New Delhi: If a man stands for a long time, his legs start hurting. According to the information received, a 32-year-old woman from Poland has not sat for the last 30 years. He can stand or sleep, but he cannot sit. He has to do all the work standing up and he has to depend on others for everyday tasks. This woman is suffering from a rare disease, due to which she is unable to sit.
The 32-year-old woman’s name is Joanna Klich, a resident of Poland. Joanna suffers from a rare disease called spinal muscular atrophy. The disease is caused by mutations in 3 genes (MYH7, RYR1 and CFL2). This causes Joanna excruciating pain when she tries to sit up, so she doesn’t even try to sit up.
During an interview, Joanna said that her mother tried to seduce her once when she was 1-2 years old. He further said that he can only stand or sleep with the help of a straight wheelchair. Joanna was able to do all the work herself until the age of 21, but with age she now has to rely on others. Joanna said that her weight is constantly increasing due to this disease. He had recently gained 10 kg which made Joanna’s position more slippery. Although Joanna lost weight, her condition is still critical.
According to reports, Joanna is raising money through GoFundMe so she can have surgery. That surgery will strengthen Joanna’s muscles which will make her life easier. Although there is a risk of death in this surgery, it is better to take the risk than to live such a life, said Joanna. After graduating, Joanna went to the UK and worked for a while in a government job. But when Joanna moved to England with her boyfriend, she ran a beauty business as a nail technician. At that time Joanna was standing for 15 consecutive hours.
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